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I was doing pretty well before this last surgery. I had gotten to a point that I could eat a variety of things, but still not enough to get rid of the feeding tube. Continue reading »
Apr 242016
Julie
Apr 132016
Last week, I got fed up with fighting the ENT over pain control. So I contacted a patient advocate who called my oncologist. The oncologist referred me to a pain specialist, but he’s not available until May 3. Continue reading »
Apr 042016
I had my second surgery today. My throat was still really sore from the first surgery, and I asked the ENT if that was normal. Continue reading »
Mar 302016
Today I went to Orlando for my CT scan, after which I saw my oncologist. The CT scan showed some abnormal tissue in my neck, but the oncologist said she’s not too worried about it right now. Continue reading »
Mar 212016
Over the weekend, the sutures that were holding the NG tube in my nose broke and the tube began to slide. The pain became unbearable, so today I had the tube removed. Continue reading »
Mar 162016
This last week has been pretty tough for me. I’ve been in a lot of pain, not just from the surgery, but also from the giant tube that’s hanging from my nose. Continue reading »
Mar 082016
Yesterday, I had surgery to try to open my esophagus. The thoracic surgeon wasn’t able to poke through from his end but the ENT was (yay!). Continue reading »
Feb 292016
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Last Monday I saw the ENT again. She said the thrush is gone, so no biopsy needed. That was a relief. Continue reading »
Feb 172016
Today I went to Orlando for my second modified barium swallow. I’ve been dreading it for the past two weeks because last time I choked so bad I was dry heaving. Continue reading »
Feb 112016
On Monday, I went to Orlando to see an ENT about my cough and for a follow-up appointment with my oncologist. The ENT was not at all friendly or sympathetic, which is not what I’d expect from someone who works in oncology. Continue reading »